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Food aversion therapy today
Zahkya has her first occupational therapy appointment today for her food aversion problem. She still won’t try new foods and she still has major sensory issues with her mouth. I have to take foods that she will eat and also take foods that I want her to eat. I don’t have very many of those foods so we’ll see. I really hope this helps her. It’s a long drive to Fort Collins so I hope it’s worth it. I wish they had something closer. I got almost all the presents wrapped the night before last night. I still have a few to go but I feel much better having the…
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Hematology Appointment
I had my hematology appointment yesterday. It went well. He saw my history of being iron deficient and ordered more bloodwork to be done. Those results came back rather fast. I was off on 5 out of the 6 tests ordered. They called me shortly after saying that I needed iron infusions and that they would call and set those up as soon as it was approved by insurance. I’m not surprised. I expected this. Hopefully, the iron infusions will make me feel better and give me more energy. My hematology doctor is in the cancer center and boy was it nice in there. They even had a grand piano.…
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Zahkya turned 5
My little girl is growing up so fast. She’s such a character and I love her unique personality. Time is a thief, I want her to be my little girl forever.
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Health Updates
There are so many health updates going on with my kiddos. Tristyn’s chronic cough still hasn’t gone away. They have thrown 4 rounds of antibiotics, 4 rounds of steroids, and a month of asthma meds at him with no change. His doctor referred him to Children’s Hospital in Denver for further evaluation. Zahkya had a doctor’s appointment on Friday and they ordered a bunch of bloodwork and urine analysis, and I had to collect a stool sample from her. Her bloodwork showed high inflammation markers, and her urine was fine, but her stool sample showed she had a type of food poisoning and an e. Coli infection. Her ear infection…
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Yesterday was a nightmare
I hated yesterday. I don’t want another day like yesterday to ever happen again. I want to forget that yesterday even happened. Zahkya woke up with croup again as I wrote about yesterday. I tried to make an appointment with her primary care doctor and she just didn’t have any openings like I expected. I’m so frustrated with that doctors office. They never have appointments when I need them. They have appointments booked out for a week or two, which isn’t helpful at all. So we went to the emergency room, again. When we first got there she was still having her croup cough (she’s never had it in the…
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Zahkya has croup again
I could just about cry. Zahkya woke up last night saying, “Mommy I’m having a hard time breathing” and started coughing that dreaded barky cough again. My heart sank. She just had this a few weeks ago and it was scary. I’ve been dealing with Tristyn’s sickness, which doesn’t seem to be getting better either, and now I have Zahkya sick again. So the very first thing I did this morning was to call her doctor. I knew what they were going to say even before they said it. Her doctor doesn’t have any openings until next week. I’ve had this problem with them for months now. I feel like…
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Wild for a smile is top-notch
Going to the dentist isn’t fun. For someone who’s had extensive dental work done, I’m terrified of going to the dentist. It’s been nothing but a painful and uncomfortable experience. This is why I haven’t been back to the dentist since having my kiddos. I’m well past time for doing so. My kids, thankfully, are starting out their dentist memories differently than mine. I found a company in town called Wild for a Smile a few years back and they are top-notch. They are patient, they are personable and they make the whole dentist experience fun. Tristyn so far has escaped getting any major dental work done and he just…
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No ER trip last night
I got Zahkya to sleep pretty easily and for the first hour and a half of her being deep in slumber, I didn’t hear her cough a single time. Tristyn still had two more assignments of homework to do so I worked with him and got that done and I got him to bed. I told Seth goodnight as I was walking straight to bed myself. About 20 minutes after me being in bed, Zahkya starts coughing. So my anxiety shot up and I sat there and listened to her. I meant to give her a breathing treatment right before bed and I forgot to so I was sitting there…
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I really hate croup
It’s been such a rollercoaster with Zahkya and her croup. The day after she got the IV steroid she was hyper and super emotional and she had meltdowns like a 2-year-old; however, for the most part, she was doing ok, almost like she had just a bad cold. So all the behavioral changes, although hard, it was worth it to have her feeling better. She did have fevers the next two nights after the steroids and she acted more herself yesterday than the previous days. I know she was excited about Halloween and she was a trouper and trick-or-treated almost as long as Tristyn did but she pooped out and…
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Medical Emergency with Zahkya last night
I tell you what, I’m about over all this sickness. Last night was completely uneventful when I put Zahkya to bed last night. She wasn’t sick and didn’t even have the sniffles. But she sure woke up in terrible shape around 2 am with the worse barking croup cough. She was crying and coughing and she couldn’t catch her breath so I turned on the light and her lips were blue/purple and she was screaming, “I need air I need air!!” I checked her oxygen levels and they were at 82% so I got the rescue inhaler and gave her two puffs of that, went and woke Seth up and…